Daisy’s Mum and Dad share their story
Daisy was diagnosed with Spinal Muscular Atrophy Type 2 when she was 16 months old, and for quite a while our life felt it had been ripped apart.
Quite simply SMA2, as it is known, is a relatively rare genetic condition which affects the growth and strength of the muscles.
For Daisy it means that her muscles will waste away, and she is very susceptible to chest infections due to the lack of strength in her lungs and an inability to cough.
We were really lucky to be accepted on to the loan scheme for a Wizzybug for Daisy and she received it the day before her second birthday, what a present!
She is extremely bright and within a week she was demonstrating her driving skills to everyone she could get to watch her.
It has opened up her world as she is now able to be mobile at home, in nursery and anywhere that we go, it gives her the legs that other children take for granted.
It is so versatile, we have a very active outdoor lifestyle and Wizzy has enabled us to continue with some normal life as a family and to enjoy these activities together, and moreover bring some normality to all of our lives. We live in a very hilly area and Wizzy copes very well. Daisy is able to take an active part in being around our two horses who don’t worry about her being in Wizzy and she has great fun racing in and out of the stables.
It has enabled Daisy to take part and enjoy simple tasks in life that many of us take for granted from going for a walk and having the freedom just to touch trees and plants to racing around on the village green with her peers. We have been fortunate to be able to take Wizzy on holiday with us, it has been to Tenerife and even on the beach in Cornwall, there aren’t many places that we don’t take it and both Daisy and Wizzy cope extremely well. People are amazed when they see us and even more amazed how good Daisy’s driving skills are at such a young age, much better than most adults!
Daisy, now approaching her third birthday, fully realises that she will never stand, walk or run like the children in her playgroup, but it does not stop her trying to race around as her friends do, in her own special way.
She is the star of the show wherever we go!